I Googled.
Here's the thing. I am a CliftonStrengths coach, so I work with the strengths identities. In my top strengths are Input and Learner. I NEED INFORMATION.
So I can't wait until my surgical consult next week.
I asked for my pathology report. They sent it to me.
So here's what I see, my lay person and total noob perspective on what it says.
Biopsy #1:
A. Invasive Lobular Carcinoma, Grade 1
B. Intermediate Grade DCIS
C. Longest Core of invasive tumor measure 5 MM
D. Biomarker studies:
ki-67 ..........................................5-10%
Estrogen Receptor......................Positive
% of nuclei staining (ER) ..........30 Weak/Blush
Progesterone Receptor................Positive, quite variable
% of nuclei staining (PR) ..........50 Intermediate Strength
Her2Neu ....................................Negative
Biopsy #2:
Suspicious but not diagnostic for DCIS
So I see good news. :) Again, totally noob and I may be just blissful in my ignorance.
Grade I is low, so that's good. I know there are a lot of variables that go into grading and categorization so I know I can't just take it at face value. 5mm may mean that the category or grade is actually higher.
The hormonal receptors may indicate possible route of treatment for hormone therapy, especially since it's positive (even if just barely so).
So. Next step is still surgical consultation next week. I have been referred to Dr. Jennifer Tittensor (I love it!) While I was initially nervous about the consultation, and not having a connection to the Huntsman Cancer Institute (HCI). However, I now have several personal referrals for the same surgeon. So I'm feeling more and more comfortable with this referral. And I know I'll have to also probably be working with additional doctors in terms of oncology and potential reconstruction.
I'm putting together questions to ask my surgeon in my consult next week. Information is power, so I will continue to gather information - from the most reputable sources available.
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